Available Data and Biosamples

The Raine Study has a wealth of data collect over 35+ years.

The Raine Study has accumulated a rich dataset spanning 17 follow-ups (i.e., data collection points), primarily focusing on Gen2, the original Raine Study babies. Initially gathered from Gen1 parents and later from the Gen2 children as they entered adolescence, the study includes a broad range of information, including but not limited to:

• Data –
  • Questionnaires
  • Physical assessments
• Biological samples* –
  • Antenatal serum
  • Cord blood
  • Milk teeth
  • Whole blood samples
  • Urine
  • Faeces
  • Serum
  • Plasma
  • DNA

All biosample requests will be reviewed by the Biosamples Expert Advisory Committee (BEAC).

*Whilst biological samples are available, there is a temporary suspension on requesting access for historically collected samples. Should you wish to access these, please email rainestudyscience@uwa.edu.au with a brief outline of your request.

Data collection points:

Follow-ups for Gen2 participants occurred pre-birth (18 weeks and 34 weeks gestation) and at key stages: birth, 1, 2, 3, 5, 8, 10, 14, 17, 18, 20, 22, 25 27, and 28 years of age. These follow-ups are denoted by numbers corresponding to the average age of Gen2 participants during the study. For example, the Gen2-22 year follow-up captured data when Gen2 participants were 22 years old. Gen1 parents contributed valuable information at pre-natal, perinatal, and 12 follow-ups until Gen2-17 follow-up.

The ongoing Generations Follow-Up, initiated in April 2023, encompasses the collection of data and biosamples from Gen1, Gen2, as well as data from Gen3, the offspring of Gen2 participants and their other biological parent, Gen2B. Limited information has been gathered from Gen0 participants as part of specialised sub-studies.

An overview of the data and biosamples collected during each Raine Study follow-up, including questionnaires and coding guides, are available below.

Here, you can find complete variable list for Gen1 and Gen2 which presents variable names and labels for all follow-ups combined in one large spreadsheet.

You can also find follow-up specific information, including the main participant questionnaire (with variable names), the physical assessment proforma (with variable names), and any additional questionnaires.

To request data access, please follow the Project Application process. More information on data access is available in step 3: Project Conduct

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