Introducing the Generations follow-up
Starting in early 2023, the Raine Study will conduct a new follow-up that will involve two generations of participants – the original Raine Study babies (our Generation 2 participants who were born into the study from 1989-1992) as well as their biological parents (otherwise known as Generation 1). This new follow-up will be known as the Generations follow-up because it will collect samples and information from two rather than just one of our participant generations at the same time, something that we have never been able to do before.
The reason why this is so important is because it will open many new avenues for future research using multiple generations of Raine Study data, which in turn will add significantly to the ongoing value of the Raine Study. To really maximise the impact of this ground-breaking follow-up, we’d love to see as many participants as possible take part in the follow-up.
We’ll be adding more information to this page as plans are confirmed, so please keep checking back for the latest updates.
What will this new follow-up include?
So far we can confirm that we’ll be collecting our core set of standard measures we’ve been taking ever since the Raine Study first began. These include measuring your resting blood pressure, height and weight, body composition, cognitive function, sleep, and activity. We’ll also collect blood and urine samples, and will ask you to complete questionnaires about you and your family, your lifestyle, diet, physical and mental health, and medical history.
Above and beyond these core measures, researchers are working to secure funding that will enable them to collect measures on other topics they’re interested in researching. In the past these have included sleep, vision and heart health. We’ll let you know as soon as we have more information to share.
Help make the Generations follow-up relevant to YOU
With this new follow-up, we want to include questions and measures on subjects that are of specific interest to our participants, not only the questions that researchers are focused on. It’s one small way we can express our gratitude to you for your 30+ years of involvement in the Raine Study.
To start things off, we’re seeking participant input via a brief survey. It will take around 5-10 minutes to fill out and is completely anonymous.
TAKE THE SURVEY here.
Who should complete this survey?
Since the Generations follow-up will collect data from the original Raine Study babies (Generation 2) as well as their parents (Generation 1 – both male as well as female biological parents), both sets of participants are invited to complete the survey.
It’s not too late to share your thoughts
The original survey closed on 17 December 2021, which we know is a busy time of year. So we’ve re-opened the survey so that anyone who missed their chance back in December can still contribute – we’d really love to hear your ideas for what you’d like to see included in the list of research topics. Should you have any questions about the survey or how your responses will be used, please contact our Follow-Up Manager Diane Wood.
Why it’s important for participants to input to research planning
Evidence shows that where participants (“consumers”) are involved in the design of research projects through surveys or questionnaires, those research projects are better received by the participants. It ensures that the issues which are most important to people are identified and prioritised.
There’s also lots of evidence that involving consumers improves how research findings are shared across the community. People are more likely to tell others about something they’ve had a say in, which in turn helps increase the chances that research findings might ultimately impact health policy.
Involving consumers in research is something that the Raine Study and its partners have cared about for a long time. Telethon Kids Institute has lots of great information on the topic (hint: the Raine Study participants played a part the development of these guidelines). The Consumer and Community Involvement Program at the Western Australian Health Translation Network is another good source about the topic.