Available Data

Comprehensive and detailed information has been collected from the mothers (Gen1) in early pregnancy and children born into the Raine Study (Gen2) since birth. More recently, data from Gen2 grandparents (Gen0) and Gen2 offspring (Gen3) has also been collected. 

This includes questionnaire data, clinical assessment information and biological sample results. Stored biological samples include antenatal blood, cord blood, placenta, milk teeth, blood, saliva, urine and DNA.

The Raine Study has multiple waves of data collection (i.e. follow-ups). These are differentiated by a number, which refers to the average age of the main participants (Gen2) at the time of the study (e.g. Gen2-22 year follow-up refers to a follow-up undertaken when Gen2 participants were 22 years old).

We have collected information from various generations throughout the last 30 years, follow-ups of our Gen2 participants have been conducted before birth and at ages 1, 2, 3, 5, 8, 10, 14, 17, 18, 20, 22, 27 and 28 years of age, with their parents (Gen1) providing information at pre-natal and perinatal time points up until they were 18 years of age. When our Gen2 participants were 26 years old, their parents (Gen1) participated in their first exclusive follow-up.


An overview of the information collected at the Raine Study cohort follow-ups and the questionnaires and coding guides for the follow-up are available below:

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