The Participant Priority Setting Project: Defining Future Research Priorities
The Raine Study has always prioritised participant involvement in shaping its research agenda. However, until now, participants had not been directly engaged in identifying the specific health topics that matter most to them. The Participant Priority Setting Project (PSP) was designed to address this gap by implementing a structured, evidence-based process for determining participant-driven research priorities.
Top 10 Participant-Identified Research Priorities:
 1. Mental Health |
 6. Neurodivergence |
 2. Health Education and Intervention |
 7. Sex Specific Health |
 3. Reproductive Health |
 8. Environmental Health |
 4. Cognitive Behaviour |
 9. Gastrointestinal Health |
 5. Generational Impact |
 10. Socioeconomic Effects on Health |
The Participant Priority Setting Project represents a critical advancement in participant-led research prioritisation. By incorporating direct cohort input into future research planning, the Raine Study ensures its investigations remain relevant, impactful, and aligned with real-world health concerns. The findings from this initiative will directly inform future research protocols, funding opportunities, and collaborations across disciplines.
Scientific & Research Implications:
The PSP outcomes provide a participant-informed framework for future research conducted within the Raine Study.
These findings will:
- Guide future study design, ensuring research aligns with participant-identified health concerns.
- Inform funding applications, demonstrating community-driven research priorities.
- Enhance translational research impact, as studies based on participant priorities are more likely to lead to meaningful health interventions.
- Strengthen cohort engagement, reinforcing the Raine Study’s commitment to participatory research.
Additionally, the project identified broader research themes beyond the Top 10 priorities, including chronic disease management, social health, and the influence of technology on well-being and more. These insights will contribute to future study areas, ensuring the Raine Study remains at the forefront of longitudinal health research.
The Raine Study extends its gratitude to all participants who contributed to this initiative, reinforcing our collective commitment to advancing population health research. We also thank Anne McKenzie AM for her invaluable guidance.
This Project was funded by the Future Health Research and Innovation (FHRI) Fund and WA Cohort Study Infrastructure Support Funding.